Overcoming FEVR (pronounced as fever) 

My nephew, Lucas who I call ‘Lucasluv’ (i.e.,  my password to my online computer portal in college for 5 years so it would remind me to pray for him) was born with FEVR.

How many of you reading this blog have heard of FEVR before today?

What in the world is FEVR? 

Familial exudative vitreoretinopathy (FEVR, pronounced as fever) is a genetic disorder affecting the growth and development of blood vessels in the retina of the eye. This disease can lead to visual impairment and sometimes complete blindness in one or both eyes.

Do you have a family member who has overcome his/her disability? If so, please give us a shout and share their story.

Is FEVR treatable?

Numerous reports of the results of vitreoretinal surgery for FEVR-associated retinal detachment have been published. In most cases, (62-100%) macular attachment can be achieved. Visual acuity is stabilized or improved in 63% to 96% of cases, and roughly one-third require more than 1 surgery.

What are the symptoms of FEVR eye disease?

Symptoms. Vision loss is the most common FEVER-related symptom. In mildly to moderately affected individuals, crossed eyes (strabismus) and “lazy eye” (amblyopia) are often encountered.

With that being said, Lucas has been an inspiration to me since his disability was discovered at approximately two years old. When I speak with him and watch him bloom into a respectful young man, it causes me to ‘flashback’ to my childhood and how I overcame being born with Cerebral Palsy. The neurologist in 1970 told my parents that it was a miracle that I could walk, run, and play sports.

I’ve been in the educational profession for three decades assisting thousands of teachers, parents, and students with overcoming a plethora of obstacles ranging from lack of self-esteem, anxiety, trauma, bullying and so much more.

To learn more about how I overcame several obstacles in my life, please tune into our episode which aired on The True Grit and Grace Podcast with my mentor, Amberly Lago.


Learn, dream, and achieve to give back to your classroom of life… If this blog inspired you in some way, please share. - Coach N. -

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